by Elizabeth Lemmon | Jul 24, 2023 | People make data
Hey eCRUSADers! It has been a minute! We’ve had a bit of a break whilst I was on maternity leave but let’s just get right back to sharing useful information to help us all navigate the world of research and administrative data in Scotland (and beyond!). This post is...
by Elizabeth Lemmon | Jul 6, 2021 | People make data
I’m thrilled to have Mr Steve Clark contributing this post to the eCRUSADers People Make Data series. Steve has a wealth of knowledge about cancer care throughout the UK and since his colorectal cancer diagnosis in May 2013, he has been involved in various...
by Elizabeth Lemmon | Sep 24, 2020 | People make data
I am very excited to share this post with you today! It is the third of our People Make Data series and this time, Pete Wheatstone talks to us about sharing patient data from a patients perspective. I had the pleasure of meeting Pete at the end of 2019 at a useMYdata...
by Elizabeth Lemmon | Jul 21, 2020 | People make data
In the second of our series, ‘People Make Data’, we hear from use MY data, an independent UK movement that was set up in June 2015 by a number of patients, carers and relatives to address the slowdown in cancer research in the wake of the Care.data programme. Since...
by Elizabeth Lemmon | Jun 22, 2020 | People make data
“Ultimately, health data is collected by people, from people and for people. If researchers want to be trusted with data, we should trust people to help us shape the rules so that the data revolution in healthcare benefits everyone.” Natalie Banner, Nature Medicine,...
