I am very excited to share this post with you today! It is the third of our People Make Data series and this time, Pete Wheatstone talks to us about sharing patient data from a patients perspective. I had the pleasure of meeting Pete at the end of 2019 at a useMYdata workshop in Leeds, …
With all that has been going on it has been a wee while since we heard from a researcher who is in the thick of working with administrative data in Scotland. In this Researcher Experience post, we hear from Dr Drew Altshul, Research Associate in the Department of Psychology at the University of Edinburgh, who …
In the second of our series, ‘People Make Data’, we hear from use MY data, an independent UK movement that was set up in June 2015 by a number of patients, carers and relatives to address the slowdown in cancer research in the wake of the Care.data programme. Since then, the remit of use MY …
In this post, we hear from Roger Halliday, Chief Statistician at the Scottish Government and lead on the new Research Data Scotland (RDS) service. RDS aims to make better use of existing administrative, public sector data in Scotland, with the ultimate goal of improving the well being of the people of Scotland. We managed to …
“Ultimately, health data is collected by people, from people and for people. If researchers want to be trusted with data, we should trust people to help us shape the rules so that the data revolution in healthcare benefits everyone.” Natalie Banner, Nature Medicine, 2020. This quote, from Understanding Patient Data’s (UPD) Dr Natalie Banner, reminds …
Date of course: Wednesday 11 March 2020 Organised by: Wellcome Trust Clinical Research Facility Post summary: In this post I provide a run through of the course: The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PBPP). As the title suggests, the course – delivered by …
In this post, Catriona Keerie, Senior Statistician within Edinburgh Clinical Trials Unit (ECTU) talks to us about her work within ECTU and her involvement on a rare Scottish trial that used administrative health data. She provides some great diagrams to help along the way, which I can tell you are essential if you want to …
It’s a new year and this week we hear from a new researcher, namely, Dr David Henderson. David is a Research Fellow at Edinburgh Napier University and Scottish Centre for Administrative Data Research (SCADR). He is no new face to the eCRUSADers scene and has built up a wealth of knowledge and expertise in the …
Author: Elizabeth Lemmon In this post, I offer my thoughts as an eCRUSADer, on the Administrative Data Research (ADR) Conference held in Cardiff between the 9th and 11th December. Given that these were three days of excellent talks and discussions, I can report that this has been no mean feat! Overall Summary The conference, organised by Administrative …
This week we hear from Dr Catherine Hanna, Research Fellow and PhD student (Cancer Research UK Clinical Trials Fellowship) at the Institute of Cancer Sciences, University of Glasgow. For about one year, Catherine has been working with Greater Glasgow and Clyde (GG&C) Chemocare data linked to both Scottish Cancer Registry (SMR06) and Cancer Quality Performance …