In this first Research Experience post of 2021 we hear from Dr Feifei Bu, Senior Research Fellow in the Department of Behavioural Science and Health at the University College London (UCL). Feifei first started working with administrative data in 2014 when she worked with the National Pupil Database linked to Understanding Society survey data (UK …
The Electronic Data Research and Innovation Service (eDRIS) is a small team within Public Health Scotland set up to facilitate access to administrative data for research. Sometime back in the beginning of 2020, I was invited along to talk to eDRIS about eCRUSADers at one of their Development Days. My main hope from the talk …
In this post, we will be discussing a very exciting project called DataLoch. DataLoch is a repository of linked health and social care administrative data sets from Edinburgh and the South East of Scotland. It was established in 2019 under the Data Driven Innovation (DDI) programme funded by the Edinburgh and South East Scotland City …
I still can’t quite believe that it has been one year to the day since I launched the eCRUSADers website with the first Welcome post.! For those of you who don’t know, before launching the platform, I had been contemplating the idea of eCRUSADers for some time whilst reflecting the challenges I faced when attempting …
I am very excited to share this post with you today! It is the third of our People Make Data series and this time, Pete Wheatstone talks to us about sharing patient data from a patients perspective. I had the pleasure of meeting Pete at the end of 2019 at a useMYdata workshop in Leeds, …
With all that has been going on it has been a wee while since we heard from a researcher who is in the thick of working with administrative data in Scotland. In this Researcher Experience post, we hear from Dr Drew Altshul, Research Associate in the Department of Psychology at the University of Edinburgh, who …
In the second of our series, ‘People Make Data’, we hear from use MY data, an independent UK movement that was set up in June 2015 by a number of patients, carers and relatives to address the slowdown in cancer research in the wake of the Care.data programme. Since then, the remit of use MY …
In this post, we hear from Roger Halliday, Chief Statistician at the Scottish Government and lead on the new Research Data Scotland (RDS) service. RDS aims to make better use of existing administrative, public sector data in Scotland, with the ultimate goal of improving the well being of the people of Scotland. We managed to …
“Ultimately, health data is collected by people, from people and for people. If researchers want to be trusted with data, we should trust people to help us shape the rules so that the data revolution in healthcare benefits everyone.” Natalie Banner, Nature Medicine, 2020. This quote, from Understanding Patient Data’s (UPD) Dr Natalie Banner, reminds …
Date of course: Wednesday 11 March 2020 Organised by: Wellcome Trust Clinical Research Facility Post summary: In this post I provide a run through of the course: The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PBPP). As the title suggests, the course – delivered by …