Are data repositories the future? An eCRUSADers conversation with DataLoch

In this post, we will be discussing a very exciting project called DataLoch. DataLoch is a repository of linked health and social care administrative data sets from Edinburgh and the South East of Scotland. It was established in 2019 under the Data Driven Innovation (DDI) programme funded by the Edinburgh and South East Scotland City …

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eCRUSADers: one year on

I still can’t quite believe that it has been one year to the day since I launched the eCRUSADers website with the first Welcome post.! For those of you who don’t know, before launching the platform, I had been contemplating the idea of eCRUSADers for some time whilst reflecting the challenges I faced when attempting …

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People Make Data: Part 1

 “Ultimately, health data is collected by people, from people and for people. If researchers want to be trusted with data, we should trust people to help us shape the rules so that the data revolution in healthcare benefits everyone.” Natalie Banner, Nature Medicine, 2020. This quote, from Understanding Patient Data’s (UPD) Dr Natalie Banner, reminds …

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Course Round Up: The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PBPP)

Date of course: Wednesday 11 March 2020 Organised by: Wellcome Trust Clinical Research Facility Post summary: In this post I provide a run through of the course: The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PBPP). As the title suggests, the course – delivered by …

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