In the second of our series, ‘People Make Data’, we hear from use MY data, an independent UK movement that was set up in June 2015 by a number of patients, carers and relatives to address the slowdown in cancer research in the wake of the Care.data programme. Since then, the remit of use MY …
In this post, we hear from Roger Halliday, Chief Statistician at the Scottish Government and lead on the new Research Data Scotland (RDS) service. RDS aims to make better use of existing administrative, public sector data in Scotland, with the ultimate goal of improving the well being of the people of Scotland. We managed to …
“Ultimately, health data is collected by people, from people and for people. If researchers want to be trusted with data, we should trust people to help us shape the rules so that the data revolution in healthcare benefits everyone.” Natalie Banner, Nature Medicine, 2020. This quote, from Understanding Patient Data’s (UPD) Dr Natalie Banner, reminds …
Date of course: Wednesday 11 March 2020 Organised by: Wellcome Trust Clinical Research Facility Post summary: In this post I provide a run through of the course: The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PBPP). As the title suggests, the course – delivered by …
In this post, Catriona Keerie, Senior Statistician within Edinburgh Clinical Trials Unit (ECTU) talks to us about her work within ECTU and her involvement on a rare Scottish trial that used administrative health data. She provides some great diagrams to help along the way, which I can tell you are essential if you want to …
It's a new year and this week we hear from a new researcher, namely, Dr David Henderson. David is a Research Fellow at Edinburgh Napier University and Scottish Centre for Administrative Data Research (SCADR). He is no new face to the eCRUSADers scene and has built up a wealth of knowledge and expertise in the …
Author: Elizabeth Lemmon In this post, I offer my thoughts as an eCRUSADer, on the Administrative Data Research (ADR) Conference held in Cardiff between the 9th and 11th December. Given that these were three days of excellent talks and discussions, I can report that this has been no mean feat! Overall Summary The conference, organised by Administrative …
This week we hear from Dr Catherine Hanna, Research Fellow and PhD student (Cancer Research UK Clinical Trials Fellowship) at the Institute of Cancer Sciences, University of Glasgow. For about one year, Catherine has been working with Greater Glasgow and Clyde (GG&C) Chemocare data linked to both Scottish Cancer Registry (SMR06) and Cancer Quality Performance …
Our first Researcher Experience post is from Matthew Iveson, Senior Data Scientist at the University of Edinburgh. Matthew has been working with Scottish administrative records for about four years. Data sets he has worked with include Scottish Morbidity Records, Scottish Census, Prescribing Information System, NHS Central Register, NRS Births, Deaths and Marriages, Scottish Stroke Care Audit. …
Welcome fellow Early Career Researchers Using Scottish Administrative Data- now known as eCRUSADers! For this first post, I thought I would briefly introduce myself before telling you more about what this blog is all about. My name is Elizabeth Lemmon, I am a Research Fellow working at the University of Edinburgh. I've set up the …